So, today I heard from Standard Life. They are willing to cover Decembers medication on compassionate grounds. For January we have another $15,000 before we reach the limit, which should cover us for that month. Until then they have a representative working tirelessly trying to find other coverage through either the government or the drug company itself.
Also, there was a computer error and that is the reason they covered us so much above the limit they were supposed to cut us off at. They could, legally ask us to repay them the money they over spent on Katha's medication. Thankfully, both Evraz (the company Amory works for) and Standard Life have decided not to make us repay because of their error.
Honestly, this is a best case scenario. I didn't think I was going to get any other answer than you are being denied, good luck on finding other coverage. Hopefully the government approves us for coverage even though Niemann-Pick Disease is not a disease they cover so far.
Standard Life has informed us that sometimes the drug company as a compassionate use program as well. So, even if the government says no, we are not completely out of options.
I won't go through the symptoms again as they haven't changed in the last two days. Keep us in your prayers because they are definitely working!
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